My daughter Eadie died suddenly of an extremely rare un-diagnosed heart condition called Endocardial Fibroelastosis (EFE) whereby her heart grew scar-like tissue rather than muscle. Eadie's chances of survival would have been greatly improved if she had specific heart pre and post natal scanning.

https://www.tinytickers.org/2018/07/20/endocardial-fibroelastosis-eadie/

A baby is born with a serious heart condition every two hours in the UK and despite congenital heart disease being one of the biggest killers of infants in the UK, only around half of congenital heart defects are picked up during routine prenatal scanning. It is absolutely vital that we provide a safety net for the 1,000 babies each year that leave hospital with their heart defect undetected. Help us to increase early detection rates of cardiac conditions thus improving a baby’s chances of survival and long-term quality of life.