Stephen's Prudential RideLondon-Surrey 100 2014 page

Stephen Roberts is raising money for Association for Glycogen Storage Disease (UK) Ltd
Donations cannot currently be made to this page

Prudential RideLondon-Surrey 100 2014 · 10 August 2014 ·

Supports people with glycogen storage diseases, very rare genetic disorders of metabolism. Offers website, newsletter, conference/workshops. Promotes understanding of and research into GSDs which are disabling and life-limiting. www.agsd.org.uk Fundraising advice: info@agsd.org.uk

Story

Thanks for taking the time to visit my JustGiving page.

This often overlooked charity is close to our family's hearts. My younger sister was diagnosed with Type 3b GSD as a baby, through a liver biopsy. Her parents were given a very negative prognosis, ie unlikely to live past 5 yrs. Thanks to some wonderful care she has proven them wrong! She is lucky as she only has a very mild 'version' and there are others much more poorly than I've ever been. There are over 10 Types and in total only about 560 people with GSD in the UK so it is very rare. Through research there are now treatments for some of the Types but no cure and the charity urgently needs funds to continue vital support for families. Please read, sponsor and share (every little donation will help). 

Donation summary

Total
£130.00
+ £26.25 Gift Aid
Online
£130.00
Offline
£0.00

Charities pay a small fee for our service. Learn more about fees