Stephen Waddilove

Stephen's A walk for Estelle 2014

Fundraising for Reverse Rett
raised of £200 target
by 17 supporters
Donations cannot currently be made to this page
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home


I did a walk for Estelle last year, and I can honestly say it nearly broke me! My feet were ruined and my body was aching but thanks to the team and will power I broke through the wall and finished it. It's four days of constant long days and walking, sometimes you've got to just put your head down and go for it other days your sitting at the back wishing you didn't sign up for it.... But that's the point; the girls didn't sign up for it either, they were born with this and they can't control it or just give up, they've got to get on and deal with it as do their parents and if I can raise a little bit of money and help improve or make their lives any easier I'll be dammed if a bit of foot or knee pain stops me!! Imagine being stuck inside a body where whatever you tell it to do, it doesn't happen, where you 100% know what's going on around you but can't interact properly... That's what's happening to them and with the right funding and support these girls could be given a normal life.

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: For Rett Registry UK:

Donation summary

Total raised
+ £32.50 Gift Aid
Online donations
Offline donations

* Charities pay a small fee for our service. Find out how much it is and what we do for it.