Steve's London Landmarks Half Marathon ~ Harvey Brown

Steve Rendell is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)
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London Landmarks Half Marathon · 24 March 2019

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

Thanks for taking the time to visit my JustGiving page.

Harvey is one of our own and Millwall’s favorite mascot and lives a stones throw from The Den and is just one of 78 children in the UK with the ultra rare disease , Morquio which is a inherited illness and means children like Harvey rarely grow above 3 foot tall or live beyond their twenties.

After a successful clinical trial , Vimizim was shown to help children like Harvey grow stronger , need fewer operations , walk without mobility aids and live longer..

So please every donation would be greatly welcomed and help MPS to support families that are effected by MPS .

Thank You 💙

The MPS Society is now over 30 years old! Since 1982 we have been supporting families affected by MPS, Fabry and related diseases, funding research and raising awareness.


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Donation summary

Total
£6,665.00
+ £1,191.53 Gift Aid
Online
£6,565.00
Offline
£100.00

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