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Alexis Ellison avatar
Alexis Ellison

Strong for Samson

To find a cure for Duchenne muscular dystrophy for Action Duchenne because they will give us longer with our beloved Samson

22 %
£5,727.65
raised of £25,000 target
by 220 supporters
Donate

Action Duchenne

We fund research into Duchenne MD to help everyone affected by the condition

Charity Registration No. 1101971

Story

In November 2015 our family received quite possibly the worst news any parents could receive.  Our always joyful, happy and beautiful 3 year old son was diagnosed with an incurable/terminal condition, Duchenne Muscular Dystrophy (DMD)

No parents should out-live their children, but sadly this will be the case for us.

Please help and support us by raising funds for Action Duchenne, so they can find a cure and save the life of our Samson.

What is Duchenne? 

Duchenne muscular dystrophy (DMD) is a rare and complex genetic muscle wasting condition, mainly affecting males. It one of the most severe muscular dystrophies, with muscle weakness appearing in early childhood between the ages of 2-5.

Many of those with Duchenne lose the ability to walk in early adolescence and young people with Duchenne typically live into their late 20’s. Life expectancy is improving all the time as standards of care and knowledge about Duchenne improve, with some people living into their 30’s, 40’s and even beyond.
In the UK, Duchenne affects around 1 in 3,500 male births, with around 2,500 people living with Duchenne.

Although mainly inherited, Duchenne can still occur randomly in any family. 

There is currently no cure for Duchenne.

Why do we support Action Duchenne?

Action Duchenne fund cutting edge technology and clinical trials into potential treatments to benefit everyone living their lives with Duchenne and Becker muscular dystrophy. They campaign for equality for people with differ-abilities and provide life lines through their support for families and people living with Duchenne.

Since Samson was diagnosed at the age of 3, Action Duchenne have given us life-changing support, vital information and hope for the future.
Action Duchenne receives no funding from the government, their entire existence is fuelled by families like us, and our supporters like you.

Through supporting us, you are helping to create a world where lives are no longer limited by Duchenne muscular dystrophy.

Its easy to donate, simply text SFSE67 £5 to 70070 thank you.

Join our team https://www.justgiving.com/companyteams/strongforsamson

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Fundraising team