Your friends are fundraising. Don't miss out, opt in.

raised by 38 supporters
Martyn Newey avatar
Martyn Newey

Supporting-CDKL5 UK

Fundraising for CDKL5 UK

raised by 38 supporters


We are fighting to give our kids a chance to live long, happy and healthy lives

Charity Registration No. 1149099


Many thanks for taking the time to visit our JustGiving page. If you've got this far, you will know that we are raising funds to support families affected by CDKL5, which is the genetic condition that affects our daughter Ellie. 

This is a new page that donates directly to CDKL5 UK. Our previous page used to donate via Rett UK and we would like to thank all those who previously donated. We raised a total of £937 and we are very grateful.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

Many thanks again for your support