Susan's Moonlight Colourthon page

Susan Kemp is raising money for Myositis UK
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Moonlight Colourthon · 6 July 2019

Myositis UK raises funds to promote medical research and improve diagnosis, treatment, management and understanding of Myositis including: Dermatomyositis, Polymyositis, Inclusion Body Myositis, Antisynthetase Syndrome, Necrotising Myositis (Myopathy) and Juvenile Dermatomyositis.

Story

As many of you will know my husband Ian was diagnosed with Dermatomyositis in October 2018.

Dermatomyositis is a disease that causes chronic muscle inflammation and weakness. It affects the muscles and connective tissues of the body, and sometimes the joints too.

The main symptoms are muscle weakness and inflammation, as well as skin rashes (‘derma’ means skin, ‘myo’ means muscle, and ‘itis’ means inflammation). The muscular weakness may be progressive and can be severely disabling.

There is no cure for this disease at present so Ashleigh and I are taking part in the Colourthon Half Marathon on 6 July to try and raise some much needed funding for Myositis UK which is a small national charity providing information to those affected by myositis and funding research to improve diagnosis and treatment.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Donation summary

Total
£1,490.00
+ £247.50 Gift Aid
Online
£1,490.00
Offline
£0.00

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