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We will be walking along the beautiful Cornish coast, from Lands End to Trevarrian approximately 70 miles over 4 days 🥰
We’ve decided to do this to give back to the charity that have helped our family during our cavernoma journey. The support we had from them during Taylor’s cavernoma diagnosis and brain surgery was incredible.
At the finish line at trevarrian holiday park we will be hosting a celebration with afternoon tea, pasties, and drinks where there will be a raffle with some exciting prizes which we will announce nearer the time!
The Cavernoma Society has been set up by those with cavernoma to help those affected by it. We are a volunteer-run charity supporting friends, carers, family, and patients affected by cavernoma. This rare neurological condition affects 1 in 600 and it's our mission to provide support and research into the condition, thus improving lives.