Susannah Rose

Susannah's Brighton Marathon for CBD

Fundraising for The PSP Association
£3,001
raised of £2,000 target
Donations cannot currently be made to this page
Event: Brighton Marathon 2023, on 2 April 2023
The PSP Association

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RCN England and Wales 1037087 / Scotland SC041199
We offer support and fund research to improve the lives of those with PSP/CBD

Story

My dad, Nigel, was diagnosed with Corticobasal Degeneration in 2018. We had never heard of this disease. It was a bewildering time, and continues to be a disorientating and deeply sad experience.

CBD is a rare brain disease caused by the loss of nerve cells in the brain. Together with a similar condition, PSP, it affects about 10,000 people in the UK. 50% of people living with CBD or PSP are incorrectly diagnosed at first.

The disease is dismantling my dad piece by piece, and he knows it is happening to him. I want to run this marathon now with his knowledge. When I told him last week that I am doing it, and asked him what he thought, he whispered, 'Bonkers'.

I am so grateful for your support of me in this challenge, my first marathon, and in fundraising for PSPA, the only UK charity dedicated to improving the lives of people living with PSP and CBD. We've used their services and they've been able to connect us with other people around the world living with this disease or supporting others who do.

I hope you never have a personal experience of CBD, but just knowing what it is could be of use to someone you know or love in the future.

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About the charity

The PSP Association

Verified by JustGiving

RCN England and Wales 1037087 / Scotland SC041199
PSPA is the only UK charity creating a better future for everyone affected by Progressive Supranuclear Palsy and Corticobasal Degeneration. If you need support, please contact the PSPA Helpline on 0300 0110 122 helpline@pspassociation.org.uk

Donation summary

Total raised
£3,000.32
+ £621.05 Gift Aid
Online donations
£3,000.32
Offline donations
£0.00

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