Raising money for sufferers of ITP disease

Michael Taylor is raising money for ITP Support Association
In memory of Julie Ogle
Donations cannot currently be made to this page
The ITP Support Association is the sole UK registered charity supporting and representing the interests of patients, and the families of patients, with Immune Thrombocytopenia (formerly known as Idiopathic Thrombocytopenic Purpura), and funding research into the causes and best management of ITP. The ITP Support Association was formed in 1995 to provide information and a support network for adults, and parents of children, with ITP. Immune Thrombocytopenia is a frightening rare bleeding disorder in which the body’s immune system destroys platelets in the blood. Unlike autoimmune diseases such as rheumatoid arthritis and MS it is not progressive as the risk of bleeding exists from the day the disease develops. It can arise in anyone at any age, and affects three to four thousand adults and children in the UK. Its symptoms vary from one sufferer to another but include nose bleeds, mouth blisters, heavy periods, large multi colour bruises, petechiae, fatigue and, on rare occasions, internal bleeding. Treatments, which all have their dangers and drawbacks, are not always effective in raising the platelet count, and only rarely cure the disease.

Story

Thanks for taking the time to visit my JustGiving page.

Back in Sept 2020 my mum, Julie Ogle, finally succumbed to the life-long problems associated with her ITP condition, an autoimmune disease in which the body mistakenly identifies its own platelets as foreign agents and destroys them. The onset of ITP can follow on from a virus, a vaccination, or certain medications, but for most people the cause is unknown.

In the UK around 4,000 people have ITP at any one time. In most cases the body is able to rectify itself and the ITP symptoms simply go away, but for some, like my mum, they can develop chronic ITP, a condition which requires lifelong care. As there is currently no known cure for ITP, the best doctors can do is attempt to alleviate the symptoms with various drugs and platelet transfusions. 

As a way of honouring my mum and raising awareness about ITP, I'm planning on walking 833 km along one of the old pilgrim routes, the Camino del Norte in Spain, which runs from Irun by the French border, to Santiago de Compostela near the Atlantic coast. By donating to this cause you are helping to raise funds for the ITP Support Association, a charity based in the UK. I will start my journey on the 27th April, and aim to finish sometime early June. 

Please help me reach my goal and in turn provide some much needed support for the many people who suffer from chronic ITP.

Donation summary

Total
£1,921.63
+ £103.75 Gift Aid
Online
£1,921.63
Offline
£0.00

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