Sylvia Reilly

Sylvia's 50 x 5K

Fundraising for Reverse Rett
£1,550
raised of £200 target
by 41 supporters
Donations cannot currently be made to this page
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for taking the time to visit my JustGiving page.

From Sunday 28th February until Sunday 18th April I will walk 5K each day to raise money for research into Rett Syndrome.  That’s 50 days.  My granddaughter, Summer is now 11 years old and at the age of 2 years was diagnosed with Rett Syndrome.  She developed normally at first, reached the first milestones in time but never seemed to have the inclination to crawl.  She has never walked and is non-verbal but understands and is not brain damaged.  Rett Syndrome prevents her making the protein for brain function.  She is dependent on others especially her parents for every single aspect of her life.  Reverse Rett is a small UK charity raising money for a cure and treatment for Rett Syndrome. I know times are hard for everyone at the moment but please donate to help find a cure for Summer and other girls and women with Rett Syndrome.

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£1,550.00
+ £196.25 Gift Aid
Online donations
£1,540.00
Offline donations
£10.00

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