Here is the link of our story:

https://vimeo.com/374268823

Esmée : a wee 18 month old girl with a very rare genetic disorder, for which there is no name, and only a few known cases in the world.

What does it mean for Esmée? 

Esmée has many challenges that other children don't have. She has super magic ears (cochlear implants) to help her hear, her heart is not totally in tune, breathing is not always easy, and at the moment Esmée needs special support to sit up. She does not see the world quite like you and me, but she does love to be under trees and lights and to see their shapes and shadows.
Esmée's favourite person in the world is her big sister, Ailsa, and her favourite thing to laugh at funny faces, particularly if you sneeze and move your head around like an owl.

What does it mean for our family?

We have quite a lot of ups and downs. We have to spend quite a lot of time in the sick children's hospital. We work with a team of specialists who help to look after Esmée, which means we have a long list of medical appointments every month. Esmée has had several operations so far, with more on the way. We have been lucky to receive a lot of support, especially from our close family, friends, and the amazing community of families in Rosewell, Midlothian. Rachel House, part of CHAS, has been a wonderful support, too, since the earliest months of Esmée's life. 

So what is this all about: 

Esmée is going on a new adventure. Lots of parents around us in our village of Rosewell encouraged us to get out and about, and soon mummy had a crazy idea: training for a triathlon. To help with training we have a running buggy and a kiddy-trailer for the bike, and for the swimming Esmée will encourage her team from the benches. Her team? As it is tiring to push a buggy and run at the same time, a full team of mums are signing up for the triathlon adventure! We want to raise money for Rachel House to give back some of the generosity we have received so far.

Anna : mum of Isaac and Seth. Seth and Esmée's big sister Ailsa are in the same class.

Cara : mum of Sylvie and Sadie, Sylvie is Ailsa's classmate  

Cassie : mum of Ilaria and Elliot, Ilaria was at the same toddlers group as Ailsa.  

Claire : mum of twins Murdo and Rory. They are like part of the family.

Claire : mum of Seren. She has been an amazing support in this crazyness. 

Denise : mum of Adam, Emily, Ollie, they are all in Ailsa's school. 

Fionna : mum of Conall and Rowan. Rowan is in Ailsa's class.                   

Edith : mum of Alice and Rory

Emma : mum of Micah and Leo. They are members of the family's gang. 

Emma : mum of George and Henry. George has also a very rare genetic DISORDER.                                                                                                      

Jane : mum of Penny and Peter, both are in Ailsa's school.        

Jennifer : mum of Annabel - classmate of Ailsa, and Ruaridh.     

Joanne : Ailsa's pre-school teacher                 

Juliette : mum of Ailsa and Esmée.                                                                   

Kristen : mum of Charlotte and Louise. Charlotte is Ailsa's classmate.  

Liz : freshly mum of Quentin and Ellie. Ellie and Ailsa were going in the same toddlers group in Rosewell.       

Lonia : mum of Danny, friendship born from. Bookclub and love of the outdoor.                                                    

Lorne : mum of Eva - Ailsa's classmate, and Harper.                       

Michelle : mum of Finlay and Daniel (Daniel was in pre-school with Ailsa). 

Nicola : Ailsa's pre-school teacher

Orianne, a friend from High School was hoping to come from France to complete the team ;-) 

Pam : mum of Daniel, Maggie and little Angus just joined the team in July ( Maggie was in pre- school with Ailsa).

Sam : mum of Jack, classmate of Ailsa. New recruit :-) 

Stephanie : mum of Thomas and Jamie (Jamie was in pre-school with Ailsa). 

Swimming coach : Claire (mum of Seren)
Running coach : Esmée (she likes to make a noise when we slow down)  Cycling coach : Lonia (mum of Danny)