Thanks for taking the time to visit my JustGiving page.

Myself, Vicki & Paul are doing a charity 50KM Ultra Trek in aid of raising as much money possible to help find a cure to stop this heart breaking  disease. this is close to all our hearts especially watching someone you know and love be diagnosed with this.

I have attached a short story from my brother Ryan who is 29 explaining how his life has been turned upside down in the last year.

Ryan - I have got some super shocking news, i don't really know how to say it to be honest but here goes.

After lockdown last year (March 2021) I got back to the gym after not lifting for however long.  I noticed that I had lost a lot of strength especially in my right shoulder. Long story short in the September to follow my left shoulder went exactly the same way, I was getting weaker, despite training constantly.

In the November I went for tests to see what was going on before I went to see my consultant.

This is when I was told I have Motor Neurone Disease ( MND ), which my mum died of.  I had a year or two left ( hopefully more).

Fast forward 8 months and my mobility is rubbish- I can walk but I am very unsteady, so anything more than a few steps I need a wheelchair.  On top of that both my arms/shoulders are pretty much useless. Luckily my hands/fingers are ok for now. IM STILL FIGHTING!!!!!!

Unfortunately 7 months later and to date Ryan is now mainly bed bound, with the odd occasion in his wheelchair for a short amount of time due to being uncomfortable.  His voice is very quiet but is made harder to hear as he is on a NIV machine to aid his breathing 24/7.

Again we are doing this Trek to raise as much as we can to stop this from happening to anyone else in the future. we need to find a cure and we need to stop it.

Please give as much as you can, every little helps towards finding a cure and help in giving people that suffer with this disease equipment to help them day to day.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.