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£2,164.00
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Team Oscar avatar
Team Oscar

Team Oscar

We are trying to raise as much money as possible for The SMA Trust because we want to see that ever important cure found

10 %
£2,164.00
raised of £20,000 target
by 41 supporters
Donate

The SMA Trust

We fund research into SMA to help find a cure and treatments

Charity Registration No. 1097765

Story

When our third son, Oscar, was born he completed our family. We fell completely in love with him.

When he was 5 weeks of age he became very ill, his lungs had collapsed and he was diagnosed with Bronchiallitus. When he became well enough to come off the ventilator we kept being told he was quite 'floppy'. Lots of tests were carried out and all came back negative.

 Eventually the genetic results were back and we were given the devastating news that our gorgeous little man had Spinal Muscular Atrophy Type 1 and that very likely he wouldn't see his first birthday. Our world was turned completely upside down.

Oscar passed away the following week aged 9weeks & 1 day. 

We decided to start fundraising to help other families and keep Oscars memory alive. We set up Oscar Rainbow.

We have now decided to also fundraise for the SMA Trust to help find that ever important cure.

You can read Oscars full story at oscarsrainbow.co.uk

Thanks for taking the time to visit my JustGiving page.

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