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Team Seppi - Rare Disease Day Fundraiser

Lindsey Hoefft is raising money for Platelet Disorder Support Association Inc

Team: Team Seppi

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Team Seppi - Rare Disease Day Fundraiser · 28 February 2022

Platelet Disorder Support Association is dedicated to enhancing the lives of people with immune thrombocytopenia (ITP) and other platelet disorders through education, advocacy and research. PDSA is a charitable organization and is eligible for Corporate Matching Gifts. All donations are fully tax deductible to the extent of the law. PDSA receives NO federal funding. PDSA offers a comprehensive array of education and support services to patients and their families as well as health care providers. We personally answer thousands of calls and emails each year, provide FREE educational materials and local support, and our Web site, pdsa.org, contains 200 + pages of valuable information about ITP, treatments, diet, and support and has become the premier news source for medical professionals and patients with ITP and other platelet disorders. Visit: www.pdsa.org

Story

February is Rare Disease Awareness Month and the 28 is Rare Disease Awareness Day.  Our youngest son has a rare disease called Immune Thrombocytopenia or ITP for short.  It causes his immune system to mistake platelets as invaders to his body and attack and destroy them and can put him at risk for life threatening bleeding.  It has played a major role in shaping his childhood thus far and over the last 3 years the PDSA has been a huge source of inspiration, knowledge, and support for our family.

This year for Rare Disease Awareness Month, and ending on Rare Disease Day, we are hosting a fundraiser to give back to the organization who has done so much for us and countless others with ITP, and we are asking for your help too!  If you’d like to read more about the PDSA and all the great things they do, their website is www.PDSA.org

Thank you for your support, we all fight stronger together!

Donation summary

Total
US$245.00
Online
US$245.00
Offline
US$0.00

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