Carmela has a team of 15 enthusiastic cyclists, including herself and her very unfit mummy, who will be taking on this years very first cycling event in aid of Carmela's Cure Campaign to help continue medical research in to her rare condition - LMNA-CMD that only a few hundred in the world has. 

The event starts and finishes at West Lavington at The Churchill Arms Pub in Wiltshire and will be a circular route around mid Wiltshire of 66 miles.

They will complete this in one day.

Carmela with her friend will be cycling the last 1km bringing the team across the finish line.

The gene called LMNA which is at fault is also found in 2 other types of muscular dystrophy called Emery-Dreyfuss and Limb Girdle 1b, so successful research in to Carmela's type will most likely help these two too.

LMNA-CMD is a progressive condition, wasting away all skeletal muscles, the muscles for breathing and risk of heart complications. Due to wasting muscles, it causes the joints to permanently shorten, which increases discomfort and pain daily, spine deformities occur and weak neck muscles creates a floppy head. So basically over time which is often before 16yrs, most children lose the ability to walk and use their arms effectively so rely on 24/7 care both physically and emotionally. 

It costs around £6000 for a scientist to spend a month on research so we would like to reach this target if possible.

Thank you so much for all your support.

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