A team of us are running the Chester Half Marathon in memory of Fraser McKie.

Fraser sadly passed away in June 2021, aged 19 months. He was an incredibly brave little boy who brought a lot of joy to many people, despite the huge challenges he faced in his life. 

Fraser had a very rare genetic metabolic condition named Multiple Congenital Anomalies-Hypotonia-Seizures Syndrome Type 1, caused by an error in his PIG-N gene. There are only around 40 known cases in the world. 

His condition meant that he had a lot of physical and neurological challenges - he was unable to hold his own head up or sit up, he was severely visually impaired and could not communicate in the way we take for granted. Epilepsy caused Fraser to have multiple seizures daily and he also had respiratory issues which ultimately proved too great for his body to deal with. 

Claire House supported Fraser and his family throughout his life, the hospice was one of the places he was at his happiest, splashing about in the hydrotherapy pool. They continue to provide support to Stewart & Ellie, following Fraser's death. 

We are running in Fraser's memory, raising funds for Claire House Children's Hospice, so that they can continue to provide their vital services to some very special children and their families. 

Runners confirmed for Team Fraser:

(If anyone would like to join, get in touch!)

Stewart McKie

Joe Mann

Lisa Benson

Liam Bagby

Sarah Butt

Laura Hobbs

Steve Whitcher

Aidan Miller

Hannah Wood

Heather Wood

Jackie Wood

Simon Webber

Daniel Jones

David Whitaker

Scott Rowlands

Connor McKie

Al MacMillan

Matt Allen

Jonathan Lewis