Update - Wednesday 31st January 2018
It is with great sadness that our fundraising efforts on behalf of Lewis and his family have ceased following Lewis’s untimely death in November 2017. We would like to take this opportunity to thank you for your extremely generous support during Lewis’s illness.
In keeping with the original intention of the fundraising, this enabled us to provide financial support to Lewis and his family during his illness. We were able to fund a very special family Christmas complete with presents, Santa and Sleigh in October. This financial support continued after his passing and the fundraising also paid for the funeral costs.
The original fundraising committee have agreed that it is now appropriate to close this Just Giving page for this particular fundraising
effort and transfer the remaining monies into several different charities. This post provides an update on the transfer of the remaining funds.
The following transfer of remaining monies was unanimously
- £ 4535 Gift Aid to be donated to the Joe Gilligan Trust who hosted the just giving page for us. We would like to thank Alyson and Craig for all their support and efforts on our behalf.
- £10,000 Donation to support Art and Music Therapy at the Royal Stoke Hospital for sick children and their families. This was something that Lewis got a great deal of pleasure from and will provide support for other children, families and staff members.
- £10,000 Donation to Susanne and Adam’s new charity (Team Lewis Trust) which is to be set up in Lewis’s memory and will focus on research into T cell Acute Lymphoblastic Leukaemia.
- £ 1,500 which will be used to upgrade a children’s room with soft furnishings at the Royal Stoke Hospital to be more like the hospice environment at Donna Louise.
- £1,000 donation to Make a Wish / Starlight foundation to make wishes come true for other children.
On behalf of Lewis’ s family Susanne, Adam and Emily we would like to thank you all so much for all your support. We hope that you will continue to support Adam and Susanne’s fundraising efforts in Lewis’s memory when their new charity is launched. You can find more details on the Team Lewis Trust Facebook page.
This Just Giving page will now close, please do not donate further via this particular page.
Thanks for taking the time to visit our JustGiving page.
Lewis Crossley is an extremely special little boy and everyone who has the pleasure of knowing him falls under his spell. Lewis is now 7 years old.
Lewis was diagnosed with T Cell Acute Lymphoblastic Leukaemia (T – ALL) in October 2015 when he was just 5 years old.
Over the last two years Lewis has undergone a variety of challenging treatments including multiple courses of Chemotherapy at both the University Hospital of North Midlands and Birmingham Children’s Hospital.
In December 2016 Lewis and his family received the devastating news that Lewis’ Leukaemia had relapsed. It was decided at that point that a bone marrow transplant would be Lewis’ best hope of a cure.
Hope was restored in January 2017 when a suitable bone marrow donor was found (an umbilical cord from the US)
Lewis had to undertake total body irradiation prior to the stem cell transplant which took place on 22nd February 2017
Despite a few setbacks along the way Lewis’ transplant was deemed a success and on 15th May 2017 after a lengthy stay in hospital (the majority of which was in isolation) he was discharged home.
On 6th June 2017 Susanne and Adam (Lewis’ parents) received the most devastating news. Lewis had again relapsed and it was reported that there was a lot more Leukaemia in the bone marrow than there was prior to transplant.
Further treatment options are currently being explored which will involve more chemotherapy but Lewis’ future has become more uncertain. Susanne, Adam and all of their family and friends are clinging onto every last bit of hope and are pursuing the possibility of new drugs and clinical trials, some of which are in the US.
Susanne has been absent from work for almost 12 months and Adam is working tirelessly to support the family business. We have therefore
concluded that the most practical thing that we could do to help would be to provide financial support to Susanne, Adam, Lewis and his little sister Emily to enable them to take the opportunity to have some breathing space to decide next steps on treatment options.
We will be organising lots of fundraising activities to support this campaign and will keep you posted.
Please help us to raise £10,000 to support this wonderful little family but especially for this beautiful, clever, funny and brave little boy.