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SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

On the 6 September at 14 weeks old, our little Rowan had her passport, got on a plane with her mummy and daddy and went to stay with her nana and gan in sunny Spain.  We had a wonderful tiime and Rowan saw some beautiful sun rises from our terrace because she didn't want to sleep much.....   Rowan was introduced to the swimming pool but wasn't too keen - too cold!!!!  She also met some of our many friends and had lots of cuddles from all who met her...

Little did we know then that the time with our precious little granddaughter would be so short......  The time we had with Rowan was always special, we used to call it our 'bubble time'...   We miss our little 'treasure pot' so much but we have so many special memories we will always treasure and she is always in our thoughts..  Rowan was truly inspirational;  it was an honour and privilege to have her in our lives - she will never be forgotten and will always have a special place in our hearts. xx

At Easter, we had a chocolate/champagne party in Spain and all our kind, generous friends raised over £220 - shared between Team Rowan and The Sick Children's Trust.  We have now a Spanish Branch of Team Rowan and look forward to raising much more in the future!!

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Donation summary

Total
£592.52
+ £51.38 Gift Aid
Online
£242.52
Offline
£350.00

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