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Hayley Johnston avatar
Hayley Johnston

Bill & Hayley Johnston's Run to Cure HD

Fundraising for Huntingtons Disease Society Of America Inc

101 %
$60,669
raised of $60,000 target
by 223 supporters
Donate
  • Team members: Bill Johnston
  • Event: SYNCHRONY ROCK ‘N’ ROLL SAN DIEGO MARATHON, 1/2 MARATHON, RELAY, 03 Jun 2018

Team to Cure HD

Make a pledge or join our Team to Cure HD during the San Diego Synchrony Rock ‘n’ Roll Marathon & Half-Marathon on Sunday, June 3, 2018 and run one of the most scenic courses in the country.

Charity Registration No. 222942363

Story

My dad, Bill, and I will be Running to Cure HD in the San Diego Rock 'n' Roll Marathon on June 3, 2018 to help raise money to cure Huntington's disease.

My mother, Ramona, was diagnosed with HD in 1999. For over 10 years, she has been receiving 24-hour care at Edgemoor Hospital as HD has robbed her of all muscle control and severely impacted her cognitive abilities. She can no longer walk, talk, chew, swallow or communicate in any way. Although her good days are becoming fewer and fewer, her heart and spirit continue to inspire me every day.

Since my dad starting Running to Cure HD in 2001, he, myself and other dedicated runners have gathered nearly $1 million in pledges and matching funds for the Huntington's Disease Society of America. I was honored to become a part of this tradition in 2009 and have since run 8 fundraising marathons by his side. THANK YOU!

Huntington's disease is a hereditary, degenerative brain disorder for which there is no effective treatment or cure. HD, otherwise known as the "devil of all diseases", is a debilitating disease that combines the worst symptoms of Parkinsons, ALS and Alzheimers. HD slowly diminishes the affected individual's ability to walk, talk, eat and reason. Children of a parent with HD have a 50% chance of inheriting this deadly disease.

Your support means the world to us. Please consider making a pledge and helping us make this the last generation of HD. Your contribution is tax deductible (Tax ID 13-3349872). We will proudly wear your name on our backs and be grateful every step of the way.

Thank you again for caring and giving hope to all of us dealing with Huntington’s disease in our lives.

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