Our friends 8 year old son was sadly diagnosed with Acute Lymphoblastic Leukeamia in November 2017. Initially the prognosis was good that he could be cured with a 3 year course of chemotherapy. However after the first month of treatment the family were informed that Liam had failed induction (this only happens in approx. 2% of children worldwide). It was confirmed that Liam had a very rare subtype of leukeamia called ETP T cell which sadly can be resistant to standard forms of chemotherapy.
Liam was escalated to very high risk and advised that a stem cell transplant once he got into remission was his only chance of cure as he is at a very high risk of relapsing.
Liam is currently on his fourth round of intensive chemotherapy to try and get his minimal residual disease (MRD) to negative or to as low as 0.01% so he can have the transplant.
The transplant gives Liam a 50/60% chance of cure but the worry is that he could relapse even after the transplant due to the rare subtype of leukeamia he has. They are looking to raise money in case he needs to go to the US for a clinical trial related to his strain of leukeamia. There has been huge success with immunotherapy for B cell leukaemia, being called a game changer in leukeamia cures and the trial we are looking at for Liam will hopefully mean the same for children diagnosed with T cell subtypes in the future.
We are hoping that Liam's transplant is his cure but we want to be one step ahead of his cancer and ensure Liam has options at every stage to beat this dreadful cancer.