For every euro you donate, Kona's Tales & I will walk/run/swim 1km and move research for #CDKL5Forward!

June is CDKL5 Awareness Month and Kona & I have pledged to walk, run & swim 400kms for Lina & her family Diana Deenesskoo! We are asking for your help to stay motivated and reach both our walking and fund-raising goal: 1eur for every km we walk/run/swim!

Lina was born with CDKL5 (cyclin-dependent kinase-like 5) and she turned 4 this year so that is why we want to do 100kms for every year of her life and honor the dedication, resilience & unconditional love with which her family shows up every day to support Lina!

Please help us stay motivated and reach our walking and fundraising goals!

P.P.S.: If for whatever reason you cannot donate on JustGiving please dm me and I will redirect you to Lina's Light Facebook Fundraising page!