I was born on the 9th March 2013. At my six week check up my GP noticed that my eyes were not fixing on anything and referred me to a pediatrician. The pediatrician upset my mummy and daddy by saying I was blind. This was the first time on my journey that I proved doctors wrong - I am not blind, however I am registered as being partially sighted and suffer from retinal dystrophy, nystagmus and a high myopia.
Since then I haven't been meeting my milestones and doctors have been trying to find out why. I have had a muscle biopsy, an MRI scan, lots of blood tests and genetic tests. Apart from my MRI scan being slightly abnormal they haven't found anything else wrong with me.Mummy and daddy refused to do nothing and after lots of research came across The Family Hope Center based in the USA. In October 2014 mummy went to see the doctors on their 10 day trip to England. The doctors and mummy came up with a programme of activities which I need to do 6 hours a day for 5 days a week. It's hard work and sometimes mummy and daddy make me do it but I'm improving everyday.
Please donate to my fund. We are trying to raise £13,500. The first £3,500 to see The Family Hope Center doctors again in April for a full 2 days. This will hopefully get me a more in depth programme. The next £5,000 for a hyperbaric chamber to get more oxygen to help heal my brain and the last £5,000 for an electrode suite (the moolli suit) to help relax my shoulders and hips.I am looking forward to continuing the programme and proving even more doctors wrong :-)
Should we exceed the target amount (or if we do not raise enough funds, or if they cannot be used for any other reason) the funds raised will go to the general funds of Tree of Hope to assist other sick childrenThanks for taking the time to visit my JustGiving page.
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