Team Ayden! Find a cure for SMA

Theresa Verzosa is raising money for The SMA Trust

Participants: Aliya Anjarwalla

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Kilimanjaro Marathon · 28 February 2016

SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

On 28th Feb, I will be running the Kilimanjaro Marathon with my teammate and best friend Aliya, to help support our little champ, Ayden.

Shortly after his first birthday, Aliya's son Ayden, was diagnosed with Spinal Muscular Atrophy (SMA), a devastating genetic condition that robbed him of his ability to walk, stand or sit independently. It means that he uses a wheelchair, and faces a future of progressive muscle wasting, loss of mobility and loss of motor function.

SMA is a neuromuscular condition that affects the nerves responsible for muscle function. It is the leading genetic killer of children under the age of two, affecting 1 in every 6,000 babies born in the UK each year. There is currently no cure.

But there is hope! Research scientists know what causes SMA and what needs to be done to develop effective therapies, and are on the verge of major breakthroughs. The SMA Trust is the only UK charity solely dedicated to funding medical research into SMA.

Please help us support Ayden and other children living with SMA!

Thank you so much for your support!

Remember: Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never share them with anyone or send you unwanted emails. Once you donate, they'll send your money directly to the charity. They'll make sure Gift Aid (an additional 25%) is reclaimed on every eligible donation by a UK taxpayer, too. That means more money goes to the charity, faster, with JustGiving.

http://www.kilimanjaromarathon.com/

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US$2,812.29
Online
US$2,812.29
Offline
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