Thomas Edward Setchell was born on the 25th of March 2018 at1:55am weighing in at 7lb 5oz. Ben and I couldn't believe our luck, we had the most beautiful baby boy, everything else just seemed to disappear.

We had the best time becoming parents, we laughed, cried and made some wonderful memories in the first few months with our baby boy.

When Thomas was coming upto 5 months old I knew something was not quite right with him. He was very lethargic, not feeding and not his normal smiley happy self. I took him to the doctors where they believed he had a start of a chest infection, so appropriate measures were put in place to clear it up.

On Saturday the 18th of August 2018, I was giving Thomas his inhaler when his lips went blue and I just knew something wasn't right. Ben and I took him straight to A&E where they saw him immediately and started to under go the basic tests. Upon a paediatric consultant assessing Thomas, she listened to his heart and detected a faint murmur.

Thomas then underwent a chest x-ray where they found a shadow surrounding his heart. He was diagnosed with Bronchiolitis and kept in hospital overnight. Myself and the nurses on the ward monitored him throughout to make sure he was drinking a sufficient amount of fluids. 

Later in the day on Sunday 19th of August we were instructed to go home and just to continue monitoring and recording his fluids with a view to return on the Monday to receive an Eco scan (electronic heart scan). 

Monday and Tuesday soon passed and Thomas had hit the worst of the infection, sleeping all day and not letting anyone hold him. We also hadn't heard anything back from the hospital.

Wednesday 22nd of August 2018. It was a normal day. Ben had given him a kiss goodbye before he left for work, I had got up, got myself and Thomas dressed and prepared his morning bottle. He was sleepy and reluctant to drink, but with some perseverance, I managed to get him to drink 1oz of milk. All of a sudden Thomas became unresponsive and had appeared to had stopped breathing. 

The rest of that day is a faint blur to myself, Ben and our family.

Thomas passed away at 1:30pm on the 22nd of August 2018 at Peterborough hospital surrounded by his mummy and daddy.

A few weeks passed, we all weren't quite sure how and why this had happened to our gorgeous little boy.

It appeared Thomas had an underlying heart condition call Dilated Cardiomyopathy caused by a viral infection called paraecho virus.

I have set up this page in Thomas' memory hoping to raise some money for an amazing charity that supports parents who have been through a bereavement as we have.

I will be setting up various events in the future to raise funds and awareness to parents of young babies and children, starting with a Paediatric first aid course for parents to learn basic first aid skills.

Please support us on our journey.

Ben and Amy,

Thomas' Mummy and Daddy x x x