Tom Hardie

Tom & Col's Trek For Hasti

Fundraising for Hope for Hasti
£4,081
raised of £4,000 target
Donations cannot currently be made to this page
West Highland Way , 5 August 2020
Hope for Hasti
Campaign by Hope for Hasti (RCN 1188769)
I'm Chris Brannigan and Hasti is my daughter; she has a rare genetic disease (CdLS). I'm embarking on a 1200 mile journey from Bar Harbor, to Jacksonvill carrying 55lb and walking BAREFOOT to raise funds for a gene therapy for Hasti's condition.

Story

Our names are Tom Hardie and Col Lovatt. Hasti is the daughter of serving Soldier Major Chris Brannigan. 

Hasti is 8 years old and dreams of being a chef and a dancer. She however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). CdLS is characterised by reduced growth, global developmental delay, feeding problems, speech and language difficulties hearing problems and, in many cases, limb abnormalities, but it is rare for children with CdLS to become adults who live independent lives, often needing round the clock care for their entire lives. No cure or treatments exist for this terrible disease which occurs in just one in every 30,000 live births, but we are committed to change that so that all children with CdLS, both now and in the future, can enjoy better lives. But to do that, we need your help. We just need £400,000 to pay for the research to create a treatment for this disease.

 We are carrying out this 96 mile, 4 day cross country trek of the West Highland Way during our own holiday period starting on Wednesday 5th August 2020. The route starts in Milngavie, just north of Glasgow, and finishes in Fort William in the Highlands. We intend to complete the walk in 4 days and we will be carrying all of our own equipment and will be wild camping along the route. Please help us to raise a small amount to help contribute towards the overall  target. Any donation no matter how small will be gratefully received. Thank You. 

Hasti's story can be followed on Facebook.

https://www.facebook.com/HopeforHasti/


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About the campaign

I'm Chris Brannigan and Hasti is my daughter; she has a rare genetic disease (CdLS). I'm embarking on a 1200 mile journey from Bar Harbor, to Jacksonvill carrying 55lb and walking BAREFOOT to raise funds for a gene therapy for Hasti's condition.

About the charity

Hope for Hasti

Verified by JustGiving

RCN 1188769
Hope for Hasti is a charity focused on the development of a gene therapy for Cornelia de Lange Syndrome (CdLS), to improve the quality of life of those living with this rare and little known genetic condition. But those that live with CdLS deserve hope, and we aim to give it to them.

Donation summary

Total raised
£4,080.28
+ £699.75 Gift Aid
Online donations
£4,080.28
Offline donations
£0.00

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