THOMAS's Go Sky Dive, tandem skydive from 15,000 feet, 29th June 2023 in Salsbury, UK & Achill Half Marathon, County Mayo , Ireland 1st July 2023 page

THOMAS TIMLIN is raising money for The Maddi Foundation
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Go Sky Dive, tandem skydive from 15,000 feet, 29th June 2023 in Salsbury, UK & Achill Half Marathon, County Mayo , Ireland 1st July 2023 · 29 June 2023

The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment! Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future. The Maddi Foundation aims to continue to support medical research to help cure this disease and also help other similar rare diseases.

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I am undertaking this Skydive and half marathon in support of the Maddi Foundation as my family and I had the great pleasure of meeting Maddi and her family during one of her many hospital trips. We were touched by her strength, resilience and determination, but moreover, her ability to reach out and help others despite her own challenges. Her wonderful family are working tirelessly to try and ensure SPG15 (Spastic Paraplegia Gene 15) can be fully researched and one day have a cure.

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Total
€4,119.17
+ €65.51 Gift Aid
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€4,119.17
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