FPWR Kilimanjaro Trek 2014
Tim Golds is raising money for Foundation for Prader-Willi Research UK
Story
At 5,895m Kilimanjaro is Africa's highest peak and in August 2014 a collective mix of friends (Sophie, Giles, Lee, Hils, Lucy, Katrina, Tristan, Simon and myself) will be taking on the challenge to climb this mountain to help raise funds for FPWR (Foundation for Prader-Willi Research).
As many of your know our son Leo was diagnosed with PWS (Prader- Willi Syndrome) when he was 9 weeks old so this is a cause very close to both Emma and my hearts.
PWS is a very rare genetic disorder and currently there is relatively little understanding about the syndrome and its challenges. As such we are really keen to support FPWR and continue to explore ways to help and one day eliminate certain challenges that people with PWS face.
If you would like some more information on FPWR please read the below:
The Foundation for Prader-Willi Research was established in 2003 by a small group of parents who saw the need to foster research that would help their children with Prader-Willi syndrome lead more healthy and fulfilling lives. Today, FPWR is composed of hundreds of parents, family members, researchers, and others who are interested in addressing the many issues related to PWS, including childhood obesity, developmental delay, psychiatric disorders, and autism spectrum disorders.
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High-quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burdens of PWS, allowing them to lead full and independent lives.
How The Foundation for Prader-Willi Research Operates:
Under the guidance of our Scientific Advisory Board through a carefully managed grants process, FPWR selects research projects based on the collaborative input of researchers and parents, choosing projects that are both scientifically meritorious and highly relevant for individuals with PWS and their families.
To date, the FPWR has committed more than $3,000,000 to support PWS-related research.
Thank you so much for your support and friendship,
Tim
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.