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Having seen this disease at close quarters I have witnessed the devastating effect it has not only on the sufferer, but their whole circle of family and friends. To see a loved one deteriorate in the manner they do is shocking to witness. 

For those that don't know,  Multiple System Atrophy (MSA) is a neurological disorder that is caused by the degeneration of nerve cells in areas of the brain. This results in problems with movement, co-ordination, balance etc. The autonomous functions of the body are likely to be affected resulting in bladder and blood pressure control and regulation issues. This is not a common disorder with only around 4/5 people per 100,000. As a result of this, there is little funding for research compared to the more common and well known disorders and diseases. 

My partners auntie, Carol Barrow was one of these unfortunate people. A life loving, active woman who grabbed and embraced life to the full.  From golf, walking, running , cycling,  3 peaks in a day, walking the Camino, she embraced and enjoyed it all. But, within a short, 4/5 years she was reduced to a shadow of herself that required 24hr care. For those closest to her, this was devastating to witness and she sadly lost her brave battle in December.

As mentioned, the fact that there is little funding for this disorder means donations and fundraising form a huge part for the MSA Trust. This is the principal funder for research and development in the UK. Myself and partner Joanne, who was Carol's niece, will be raising funds and running in Carol's honour. We are all aware of tuff times being had by most in this current climate which makes donations mean even more. All donations no matter how small will be hugely appreciated by ourselves and the trust, and I thank one and all in advance for your generosity.

Tim Hall