Timothy Jones

5k 365 challenge

Fundraising for Reverse Rett
£3,506
raised of £1,825 target
by 89 supporters
Donations cannot currently be made to this page
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

I am in the process of a self imposed challenge to run 5K a day for 365 days. There are no exceptions for hangovers, illness, Christmas, holidays or injury! Every. Single. Day.

I’d like to try and raise £1 for every kilometre I run!

I have been doing this with a very special girl called Hannah at the forefront of my motivation. Hannah lives with a neurological disorder called Rett syndrome. She was born a healthy and happy little girl but at around 18 months started exhibiting some developmental delays which were finally and earth shatteringly diagnosed as Rett syndrome. Most people with Rett Syndrome are unable to speak, walk or use their hands. Breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopaedic issues are common. Research has shown that people with Rett do not have brain damage. They know and understand much more than their bodies allow them to show – but they are locked in, trapped by a body that cannot obey signals from their brain. If a cure can be found then Hannah and all the other little girls with Rett syndrome might be released from this and be able to live the life of a normal girl with out the pain and limitations that affect them. Every. Single. Day. 

 

I am currently on day 334 And have a total of 32 left. 


If you can, please sponsor me.


Thanks in advance. 


Tim

About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£3,505.18
+ £482.13 Gift Aid
Online donations
£3,505.18
Offline donations
£0.00

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