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natalie gurr

Tommy Salisbury's Team

running the half marathon for Fight for Sight because we are helping to save Tommys sight.

133 %
£6,691.00
raised of £5,000 target
by 213 supporters
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  • Team members: Madlin Sadler, Lauren jeffery,Rachel, Steers, Natasha Griffin, Poppy Greenhalgh, Melissa Roling, Emma Perry, Sam Perry, Sue Meakin, Michelle Dover, Nicole Coupland, Claire Verwyst
  • Event: Run to the Beat, 28 Oct 2012

Fight for Sight

We fund pioneering research to prevent sight loss and treat eye disease

Charity Registration No. 1111438

Story

On 28 October me and 66 other runners supporting Fight for Sight will be running the Run to the Beat Half Marathon in Greenwich.  The reason I decided to do this is:

Twelve year old Tommy Salisbury has Choroideremia, which it is a rare inherited eye disorder that causes progressive sight loss. This genetic condition is passed through families by the X-linked pattern of inheritance and so the condition almost exclusively affects males. Those with choroideremia tend to develop night blindness in their teens, which progresses to tunnel vision and blindness 20 to 30 years after the onset.“

'Thanks to the Tommy Salisbury Choroideremia Fund set up by Emma Salisbury in 2005 research into new treatments for Choroideremia has been greatly enhanced.  Following the worlds first clinical trial they hope to see direct benefits for patients, stopping the progression for Tommy and others suffering with this condition. 

Over the last few years the Tommy Salisbury Choroideremia Committee has raised approximately £280,000 for research into Choroideremia.  The Salisbury family and friends organise many different fundraising events throughout the year including coffee mornings, golf days, discos and charity dinners as well as sponsored runs, bike rides, walks etc.

Please help me to support this amazing charity and sponsor me.

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