As a family we have lived with ME since 2010 when my youngest daughter was diagnosed, then in 2012 my middle daughter was diagnosed with ME and finally in 2016 I was diagnosed with this illness.
Unless you have lived with the condition it is difficult for you to comprehend the day to day life challenges we have to navigate. The balancing of what we do in order to be able to have any kind of function.
We are very slowly finding that awareness is growing about this condition, it is life~long and life changing.
Please support me as best you can ~ it would mean an awful lot to me and my family, as well as other sufferers.
I will be doing my walk on May 12th which is the International ME Awareness Day.
On this day I will be at my favourite place on the Yorkshire coast. With this in mind I will be walking as far as I am physical able, taking a day out to walk and rest, walk and rest to challenge myself to doing something that I find increasingly difficult. I also have hypermobility which makes walking painful so instead of one continuous walk I will be taking a day out to do it and incorporate multiple rest breaks.
What you won't be able to "see" is the amount of rest needed both prior and after the day of walking. It will take roughly a week of bed rest to recover as my ME is pretty limiting right now ~ I hope this will not be the case in the future with possible medical breakthroughs ~ who knows.
I will blog the days events and share with my supporters after the event.
Thank you in advance ~ below is a brief description of what Invest in ME Research do...
Invest in ME Research is an independent UK charity finding, funding and facilitating a strategy of biomedical research into Myalgic Encephalomyelitis (ME or ME/CFS).The charity is run by volunteers - patients or parents of children with ME - with no paid staff.Overheads are kept to a minimum and all funds raised to go to promoting education of, and funding for biomedical research into, ME.Our efforts are focused on setting up a UK Centre of Excellence for ME which will provide proper examinations, diagnosis and in time treatment(s)/cure(s).
Thank you, Tonks xxx