Lillyanna was born on the 22nd December 2018, we've never felt love like we did for her from that day. From the first moments of Lillyanna's life we knew that something wasn't right. She spent the next 37 days in hospital with doctors performing all sorts of tests, hoping to find out what was wrong and what had caused her problems. (Please follow Lillyanna's story on https://tubiedove.co.uk)

On the 26th February 2020, we were given the news that they had found what was causing Lillyanna's problems, Mitochondrial Disease. This was the first time we had ever heard of the disease and it came as a massive shock. However much we wanted answers to Lillyanna's problems, we were devastated that this disease was the one which was confirmed.

When we received the diagnosis we were put in touch with a nearby charity, coincidentally called The Lily Foundation which was founded in the memory of the founders daughter Lily, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today. There is no cure for this disease which is for many, debilitating and life limiting.

I will be doing 20,000 steps a day (until I complete half a million steps... yes, 500,000!!!) in aid to raise money for more research into this devastating disease and to find a cure. 

I have a Fitbit which will be tracking my steps and I will post the results at the end of every day!

As we are having to shield currently due to the corona virus this will be done entirely in our 2 bed flat and garden. 

Thank you for your time and donation, together we can raise awareness and funding to find a cure!

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