Amyloidosis is a rare and incurable disease caused by the build-up of abnormal protein fibres (or ‘fibrils’) in tissues and organs throughout the body, interfering with their function. Almost any organ can be affected, so the symptoms vary greatly and diagnosis can be very difficult.
Research and development of new treatments for amyloidosis in the National Amyloidosis Centre, based at the Royal Free Hospital in London, have made enormous contributions to understanding of the disease and to improved outcomes for patients. These achievements have been recognised by the award of large research grants and by the generous funding of patient care by the NHS. However, award of formal research grants takes many months and is tied to particular uses. There is always a need for flexible research funds which can be used whenever required for new developments and ideas. The UCL Amyloidosis Research Fund, a charitable fund within University College London (UCL), was created to serve this function and receives donations from patients, relatives and other supporters. It is an invaluable resource for the Centre, enabling crucial developments for the benefit of patients which would otherwise not have been possible.
The resources provided by the UCL Amyloidosis Research Fund, through the generosity of donors, will undoubtedly make major contributions to alleviating the suffering and saving the lives of many thousands of individuals afflicted by a terrible and hitherto incurable disease. Every penny is received with sincere gratitude and is used specifically and in its entirety for amyloidosis research.
Thank you for taking the time to visit our UCL Amyloidosis Research Fund page, we greatly appreciate your support.
For further information please visit http://www.ucl.ac.uk/amyloidosis or email beth.jones@ucl.ac.uk
