Jib's Sky's the limit ride

Jibreel Arshad is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)

Participants: Anyone who is rare

Donations cannot currently be made to this page

Manchester Skyride · 2 August 2015

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

I am trying to raise money for the funding of Vimizim until NHS England make their decision in October. Vimizim is the only licensed drug which has been proven to slow disease progression for those affected by Morquio.

NHS England believe Vimizim doesn't provide enough benefit to fund. I will be cycling to prove them wrong. How far can I go? There's only one way to find out...

For more information on Morquio and the fight for treatment click below:

http://www.mpssociety.org.uk/conditions/access-new-therapies/current-campaigns-our-fight-vimizim/

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Donation summary

Total
£1,195.33
+ £211.50 Gift Aid
Online
£1,045.33
Offline
£150.00

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