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Vicki Lord Session-Stylist avatar
Vicki Lord Session-Stylist

Vicki Lord Runs Marathon

Raising awareness for Joseph’s Goal for Joseph's Goal because A truly inspirational family need our help ❤️

18 %
£310.00
raised of £1,700 target
by 2 supporters
Donate
  • Team members: Elly, Sam and Mikaere
  • Event: St George’s day marathon, 23 Apr 2020

Joseph's Goal

Joseph Michael Kendrick is 10 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Charity Registration No. 1151548

Story

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  Elly came into my life as a bridal client of mine and blew me away with her kindness and strength. Elly is a highly intelligent woman who was very sought after in her career. Elly and Sam feel pregnant with their beautiful baby boy Mikaere. Mikaere was unfortunately born with  a rare and metabolic terminal illness Nonketotic Hyperglycaemia. Elly gave up her career to be her sons full-time carer. Elly and Sam’s are determined  to find a cure for their son. I personally wanted to help in any I could.  I  have lupus an auto Immune disease where I suffer from aches and fatigue but this  is nothing compared to what Mikaere has to deal with on a daily basis! Although running a marathon is going to be a tough deal for a lupus suffer I’m going to do this for a beautiful little boy that needs our help! Please kindly help Elly, Sam and Mikaere to beat this disease but donating and raising awareness! We can do this together 💪 thank you for all your love 💕 

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