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Victoria Lewin

Bespoke books for families living with IH by Victoria Lewin

I've written two books for Intracranial Hypertension Research Foundation because I want to help others & support IH research too.

21 %
$1,054.00
raised of $5,000 target
by 6 supporters
Donate

Intracranial Hypertension Research Foundation

Charity Registration No. 912100291

Story

Thank you for visiting my fundraising page. It's been set up to raise money for the IHRF to fund IH research and hopefully, one day find a cure for IH. You can learn more by visiting their website - www.ihrfoundation.org 

I've created two books especially for families living with IH. These are the books I wish I'd had when my husband was diagnosed with IH in 2003 when our children were only 5 and 2 years old.

'Love is all we need' is a book for children who have a family member with IH. It helps them to get through the bad days more easily and make the good days GREAT! Filled with stories where the characters have a parent with IH, and a story explaining what IH is to small children, through a magical hippo called Idris, together with lots of tips, ideas and games, it'll really make a difference for any child dealing with the complexities of caring for a loved one with IH.

'Living with IH - Advice for carers' is a book filled with tips and advice for adults caring for a loved one with IH. It's an absolute must for anyone in this situation.

I've donated these E-books to the IH research foundation, in order to raise much needed funds to continue their vital work.  Please donate whatever you can, the whole idea of this project is to make the books accessible to everyone, so if you can only afford $5, that's okay. There's no fixed amounts. I want everyone to get the support from these books...as I said I only wish there'd been something like this 15 years ago!

100% of the proceeds are going to the IHRF. Every pound / dollar helps our IH community. Once you've donated you'll be sent to a 'Thank you' page where you'll find a link to get your copy of the E books.

Thank you so much for your donation.

Best wishes

Victoria.



The Intracranial Hypertension Research Foundation.

The Foundation has a 3-fold mission: --To catalyze and to directly fund new research that will lead to improved understanding of intracranial hypertension (IH), and to more effective therapies for those who have this disorder; --To educate the medical community and the general public with the facts about IH and to raise public awareness of the impact of this condition on the lives of those who develop it; and --To assist the IH community, including patients, their families, and their care teams, in better serving the medical needs of persons with IH. We serve all persons with IH, a chronic disorder defined as abnormally high cerebrospinal fluid pressure. The disorder can be triggered by a host of insults to the brain, including chemical, physical, and biological triggers, and often leads to loss of vision (blindness), significant neurological difficulties, and excruciating headaches. Those with IH are frequently disabled.

Tax ID

91-2100291

Address

6517 Buena Vista Dr
Vancouver, WA 98661

Website

http://www.IHRFoundation.org



 


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