Hi, I'm Victoria and I was diagnosed with Hypermobile Ehlers-Danlos Syndrome (hEDS) 6 years ago at the age of 24. It took over 10 years and seeing doctors privately for me to get a correct diagnosis of hEDS after being told my physical symptoms were down to mental health and there was essentially nothing wrong with me. Even now with a diagnosis of hEDS accessing correct care and treatment is still tricky and something I have to fight for. This should not be the case and early and correct diagnosis and treatment, along with medical professionals who are aware of and understand the complexities and multi-systemic nature of EDS, can and will make a huge difference to the day-to-day lives of people living with this condition.

If you feel moved to donate, any amount big or small is appreciated and will really help people like me access the support and treatment we need. If you can't donate, thank you for coming to take a look at this page, and please take a moment to click on the links of these EDS charities who are working so hard to raise awareness and help as many people as they can.

https://www.ehlers-danlos.org/

https://www.ehlers-danlos.com/

Thank you and have a great day!