•Leg it with love for Louie •

                             ✨My story by Louie✨

My name is Louie Milo Starrs when I was in my mummy’s tummy I was diagnosed with spina bifida myelomeningocele & hydrocephalus at my 20 week scan. It was a shock and quite scary for mummy daddy & me.

It meant I wasn’t growing the same way most other babies grow & I was going to need some special care when I was born, my future was uncertain. There were lots of questions to be asked, some positive answers some not to positive. 

My mummy & daddy decided to call me Louie which means “famous warrior” I knew with their help I could win this battle!

I was born in the 20th of February 2023 at 12:15pm to the circle of life weighing 6lb6oz here is we’re my battle begun.. At 3 days old I had my first operation to correct my spine and close my back, 6 days old another to fit a shunt this would help fluid drain from my brain & my 3rd operation at 9 days old to fix the shunt.

Operations,temperatures,infections, oxygen,catheters were my way of life. At 8 days old my mummy & me had our first proper cuddle, I was warm loved and full of hope now I was in her arms.

March the 6th 2023, I graduated. I moved to level 2 the special care ward. I’m now getting much stronger and on the right path home. Baby steps but lots of them!

I can’t wait to come home to live with my family I hear there crazy! During my stay iv depended on surgeons doctors and nurses & alot the special equipment as have my baby friends around me. I would love to be able to find a way to say Thankyou for everything they have done, for the love & care I have received.

As you know I’m just a baby so I need a little help with his my crazy aunties have arranged to take part in ‘the kilt walk’ too raise funds for spina bifida myelomeningocele & hydrocephalus apparently they walk lots & people give them donations for a charity of their choice, they are more than happy to do this as they say I have already done my marathon! 

So on behalf of myself, all my baby friends & my family, we would be so very grateful if you could lend your support for this special cause, times are difficult for everyone so even if your not in a position to help Thankyou for visiting the page & reading my story! It helps to raise awareness, I Thank you all so much from every little beat of my heart, Louie x