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Ian Hendry avatar
Ian Hendry

Walk the Speyside Way for Lena

Fundraising for Cystinosis Foundation UK

128 %
£1,285.00
raised of £1,000 target
by 47 supporters
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  • Team members: Ian Hendry, Colin Buist, James Stephen, Ronald Simpson, Michael Stephen, Chris Hendry, Jonathan Buist, Matthew Buist, Jack Simpson and Ben Allan.
  • Event: Walk the Speyside Way, 04 Apr 2010 to 09 Apr 2010

Cystinosis Foundation UK

TO PROVIDE SUPPORT TO ANYONE DIAGNOSED WITH CYSTINOSIS, AS WELL AS THEIR FAMILIES AND FRIENDS. TO HIGHLIGHT THE DISORDER TO MEMBERS, THE MEDICAL PROFESSION AND THE WIDER COMMUNITY. TO ASSIST IN THE PROMOTION OF RESEARCH INTO THE TREATMENT OF CYSTINOSIS. TO WORK ALONGSIDE OTHER SIMILAR ORGANISATIONS IN UNDERSTANDING MORE ABOUT METABOLIC DISORDERS IN GENERAL

Charity Registration No. 1074885

Story

Thanks for taking the time to visit our JustGiving page.

This walk in support of the Cystinosis Foundation UK, was proposed by Matthew Buist from Macduff, inspired by the courage of family member Lena Forsyth (9) who is one of only fifteen people in Scotland to have this condition. 

The condition means Lena has to take medication five times per day, to prevent cells in her body turning into crystals, causing organ damage. The side effects of the medication limits the activities Lena can participate in, although she is a very determined and courageous young girl.

The condition is very rare and occurs in 1 in every 200,000 births. The Cystinosis Foundation UK is a charity established in 1999 and their aim is to carryout research into this condition to achieve a better understanding and earlier diagnosis, helping sufferers lead a longer and fuller life.

Our team, comprising family members and friends will walk the 65 mile Speyside Way from Aviemore to Buckie in April 2010, camping throughout the journey.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

If you are able to make a donation in support of the Cystinosis Foundation Uk, it would be very much appreciated.

Photos

7
  • Those boots are made for walkin.........
  • The beginning.....
  • It's a long trek uphill through the snow +5

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