Ward and myself will run next year the London Marathon for a charity. The purpose is to collect funds for research with the ultimate objective to find a therapy to cure the Thallassaemia disease.
My wife, Sabah Bandoui is a carrier of this hemoglobine disorder and my brother in law a patient who services constant blood transfusion and heavy medication with its risks and complications.
Therefore, we hope to collect as much funds as possible and we will be grateful from the bottom of our heart for any gesture you could have to help this cause.
Thank you in advance and let’s get some fund!
Julien MS, Sabah B & Ward S.
Julien & Ward's page
We are running the London Marathon for United Kingdom Thalassaemia Society because more money is needed to fund research
UK Thalassaemia Society (Est. 1976) supports people affected by thalassaemia, a genetic blood disorder which requires lifelong blood transfusions & various other medical treatment. The charity offers support, advice, counselling & distributes information encouraging blood screening. It also organises conferences for patients & health professionals to keep them up to date on the latest treatments available.
Charity Registration No. 275107