Glen Turner

Abseil from the ArcelorMittal Orbit on 21 October

Fundraising for Nystagmus Network
raised of £1,000 target
by 44 supporters
Donations cannot currently be made to this page
Participants: Nystagmus Network (Claire Amoroso, Claire Brinn, Matt Dawson, Richard Breffitt, Richard Pitman, Tom Rolley, Vicki Rolley & Vicky Pitman) and Aniridia Network (James Buller)
Nystagmus Network

Verified by JustGiving

RCN 1180450
We foster and fund research to improve lives for people with nystagmus.


Hello, thank you for stopping by my page!

I was born with nystagmus as a side effect of aniridia. Nystagmus means my eyes shake and wobble involuntarily all the time, and as a result it's hard for me to see detail and read text unless it's close up or enlarged.

I struggled with my confidence in early childhood, but went on to make many friends, get a degree and secure a good job. And recently I've moved to London, an amazing, exciting city. I'm really enjoying trying new things, meeting new people and taking up new opportunities, as part of which I've formed a close connection with the Nystagmus Network. My adventures to date are documented on my blog and Youtube channel at

So on the 21st October 2018 I took on my biggest challenge and greatest opportunity yet - abseiling 80 metres (262 feet) down the ArcelorMittal Orbit tower in the Olympic Park! I had never abseiled before that, but the prospect excited me - raising money for a great cause while enjoying amazing views and trying something completely different, what's not to like?

It was an absolutely incredible experience, and one that I would happily do again. There were nerves to begin with, sure, and it did take a minute or two to override my  natural reflexes and step off the platform into mid-air. But once I did, it was very relaxing and comfortable, and the views were strunning in the glorious sunny weather.

The money raised will fund pioneering research into nystagmus at Moorfields Eye Hospital and the University College London Institute of Ophthalmology, including Vijay Tailor's study into nystagmus and visual crowding, and Parashkev Nachev's work on magnetic implants to control rapid eye movements. These projects have the potential to make a huge difference to many thousands of people's lives.

My visual impairment hasn't stopped me being happy and successful, and it didn't stop me from doing this. Your support so far really got me through it, and any more donations you can give will be hugely appreciated. 

Donating through JustGiving is simple, fast and totally secure. You can donate here on the website with just a few clicks. Or you can donate via SMS, by texting WENA80 followed by a space and your amount (£1, £2, £3, £4, £5 or £10) to 70070. For example, to donate £5 text WENA80 £5 to 70070.

You will also be asked if you want to include Gift Aid. If you are a UK taxpayer please say yes. The government will then increase your donation by 25% at no extra cost to you.

Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Thank you so much for your support, I am very grateful indeed!

About the charity

Nystagmus Network

Verified by JustGiving

RCN 1180450
Nystagmus means involuntary movements of the eye. It impairs vision, affecting focus and depth perception. At least 1 in 1,000 babies are born with nystagmus. There is currently no cure. The Nystagmus Network is a UK registered charity which provides support, raises awareness and funds research.

Donation summary

Total raised
+ £143.00 Gift Aid
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