Last weekend, James (5) completed his 2.6 mile challenge, the furthest he's ever run.

Millie (8) is going to be doing hers this weekend.

Along with our neighbours who are fundraising for other charities, Sarah & I are running a 26 hour relay, one person at a time, doing (500m) laps of the road we live on. Over the weekend we think the runners will clock up between 250 and 300km!

DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community.Together we #FightEB and together we will beat EB.