Thanks for taking the time to visit my JustGiving page.
My son has this illness and there isnt a cure, initially the illness affects the kidneys causing them to fail, so they need a transplant. the illness affects the eyes and other organs, unfortunately some have lost their life to this illness so funds are needed to find a cure, any donation would be much appreciated.Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.