The BDFA provides support, advocacy and information to children and young people with Batten disease and supports their whole family. On 9th June 2021 it is international Batten Disease Awareness Day and the BDFA have a week of awareness events planned! We are also seeking to raise funds for the continued work of the BDFA and so we are launching this exciting event for anyone to get involved in and support. What is the event? There are 13 types of Batten disease and we are asking fundraisers to complete a challenge involving the number 13!