Hi, anyone who has taken the time to read this, thank you. 

So, our son Odie has a rare genetic syndrome called Mowat-Wilson Syndrome. Since diagnosis we have found ourselves dealing with a rollercoaster of emotions and logistical hoops to jump through in what is a new norm for us all. There is so much involved in having a child with differences including a lot of communication, paperwork and applications for assistance. We have, and are still, receiving a huge amount of help from a charity called Amaze. Amaze help families who have children with disabilities, both emotionally and giving information, advice and support to families with special educational needs and disabilities (SEND) children. We could not have navigated this journey so far without their help and most importantly compassion. All  of the staff have children with disabilities so can truly understand and empathise  how we are processing and learning this new unknown.

I would love to be able to give back to these “AMAZE”ing  people who have helped us beyond expectation and made us feel welcomed and supported in a time which is so alien and disorientating. 

When you’re cast into an unknown all you need is an anchor or a glimmer of hope, this charity provides that beyond expectation. 

I am swimming around Jersey as a solo swim (65km) in September 2023 and then in 2024 I will tackle The English Channel as a solo… two very different and difficult challenges.

Please give anything, nothing is too small.