Alports is an inherited kidney disease and runs in my family. Myself daughter and son all have Alports. There is no cure only treatment dialysis, then eventual transplant. It affects males worse than females, usually in early adulthood.and effects other organs, sight and hearing. Finding this new charity has been fantastic not only for myself but lots of individuals, gaining support from other patients facing the same as yourself. It contributes to research internationally, as well as provide free information days across the country for patients. These include professionals giving up their own time, giving informative but informal workshops with advice on coping with Alports, medication, current research findings, diet advice, audiologists, transplant surgeons etc. We recently funded our own web site www.alportuk.org and launched it just before Christmas of which we are very proud of. We need to raise both an awareness of this condition as well as raise funds for all the above to continue, so any donation is very gratefully recieved.