16 days to go

Thanks for taking the time to visit my JustGiving page.

I am taking part in a 8 week training programme with a white collar boxing match at the end  with fight club northwest 

when my 3 year old son noah was 5 days old a midwife come to our house and told us that his heel prick results had revealed an abnormality she told us that noah had PHENYLKETONURIA  (PKU) we dint have a clue what this was PKU IS a very rare genetic disorder only about 1 in 10000 babies have this

the condition means he has to follow a very strict diet. NO MEAT, FISH, DAIRY, NUTS, CEREALS, the list goes on he has to take supplements with amino acids have blood tests every Monday 

if not treated children with PKU will become permanently brain damaged have seizures epilepsy and extreme cases death

I am raising money for the NSPKU because they have provided us with help and advice they need funding to research into possible treatment and raising awareness 

Noah is a fantastic little boy and we are very proud of him and love him very much anything you can give will be much appreciated 

thank you in advance jack

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