Jenson is our amazing 3 year old son who unforntunately suffered from a lack of oxygen whilst being born. He spent the first 2 weeks of his life in intensive care at plymouth hospital. When he was 6 months old he was then diagnosed with spastic diplegia / cerebral palsy. He also developed infantile spasms at this time and spent 2 weeks at Bristol Children's Hospital, this then later developed into epilepsy just after he turned 1. 

We have recently found out about SDR, an amazing operation that could change Jenson's life forever. The operation is an expensive procedure and involves travelling to America to have it done. It also requires intensive post operative therapy but it could lead to many exciting possibilities for Jenson.

We are ultimately hoping this operation will lead to Jenson being able to walk.

Before Jenson can under go the operation we really need to build up his strength which will require private physio sessions, Horse Back riding and specialist equipment that the NHS cannot provide.

The NHS waiting list is very long and the criteria very strict along side far far less experience than St louis Hospital in America. St Louis Hospital have been performing the SDR operation since the 1980's and have a 100% success rate on thousands of proceedures. We dont want to risk any problems which is why we as a family are going down the private route as we only want to best for our boy as anyone would.....

*Update* We have now had our meeting with the NHS and they have declined Jenson due to their very strict criteria. They did however say he would benefit massively from the SDR operation. They will only currently operate on children who can already walk with a walking frame or unaided with minor developmental delay. This now reinforces what we are doing for him privately. 

All funds raised will be spent towards Jenson only with physio therapy, special equipment, the operation with the associated costs and years of physio after the opp the get him on his feet.

We would really appreciate any fundraising ideas or help you can give to make this happen for Jenson.

Updates 22

Hi Everyone, We would just like to say a huge thanks again to everyone! Big Thanks to Hatherleigh Rotary Club for their Comedy Night which brought in another £744.63. Big thanks also to Barnstaple Round Table with their very generous donation of £5000! Jenson is doing great! XXXX

28/07/14 03:13

Only 1 week to go until Jenson's operation! Please feel free to join our facebook group to keep updated with Jenson's progress Thank you for all your support xxxxx

18/06/14 10:30

WOW WOW WOW!!! Thanks everyone so so much that has helped us hit Jensons target and beyond! We are all booked for his operation next month (scary and exciting!!!) Please continue to follow Jensons progress via his facebook page. Joel, Carly, Jenson and Freddie! xxxx

12/05/14 07:29

***UPDATE*** Jenson has been approved for the operation! We are so excited for him. Thanks everyone for getting us this far with the fund raising. Only £2900 to go! Keep up to date on his Facebook page. Search "Jenson's page" dates TBC.

04/03/14 08:10

Please feel free to check out Jenson's progress video on: This is the correct link not the one below!

16/02/14 08:29

Raising money for

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

All donations are paid into Tree of Hope's general funds which fund our charitable activities. Our charitable activities are focused on raising & managing funds for medical treatment, therapy & equipment for sick & disabled children. England & Wales 1043092 Scotland SCO4261

Raising money for

Run by Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Donations 730

Well done Ed for running 5 marathons

Donation by Pat & Patricia Coles on 22/07/14


+ £7.50 Gift Aid

Good luck Jenson and family on your trip to America, wishing you all the success on Jenson operation. Xx

Donation by Kas Crane Hire Ltd. on 15/06/14


+ £12.50 Gift Aid

Many congratulations to Ed Spencer for running 5 Marathons

Donation by Marion O'Brien on 29/05/14


+ £5.00 Gift Aid

Donation by Jan Whittle on 19/05/14


1st load of scrap weighed in that was kindly donated by the Ward and Marshall Family. Thank you! :-)

Donation by Anonymous on 12/05/14


+ £29.25 Gift Aid

Donation by Three Horse Shoes on 02/05/14

Donation by Anonymous on 28/04/14

Very happy to help you reach your target, hope the operation is a big success!!! Best wishes xx

Donation by Rance & Davis families on 27/04/14

Well done Ed. Wishing Jenson all the best.

Donation by Peter Butlin on 26/04/14


+ £5.00 Gift Aid

Why would anyone run 131 miles and 165 yards when the pubs are open? great Effort for worthy cause - hope op goes well. Rennocks famiglia

Donation by Anonymous on 25/04/14


+ £12.50 Gift Aid

Good effort Ed!

Donation by Steve McCarthy on 25/04/14


+ £2.50 Gift Aid

Sorry we were not there to see you run Ed but maybe another time. We hope and wish Jenson all the luck in the world.

Donation by The Leet-Cooks on 24/04/14


+ £6.25 Gift Aid

From all of us at allaboutonline Ltd we are happy to donate for Jenson xx

Donation by Adam stacey on 24/04/14


+ £50.00 Gift Aid

Well done Ed!

Donation by Ollie Edwards on 23/04/14


+ £5.00 Gift Aid

Well done Ed!

Donation by Garry on 22/04/14


+ £2.50 Gift Aid

Ed as promised an extra £50 for every marathon completed. We are all so very proud of you that was an outstanding achievement Well done mate. Very very impressive!!!!!! cheers Rik

Donation by Rik Farrer on 22/04/14


+ £62.50 Gift Aid

Well done Ed

Donation by Sally RC on 22/04/14


+ £10.00 Gift Aid

We only joined Ed for the last 5 miles - even that was painful! Well Done!

Donation by Matt & Laura on 22/04/14


+ £5.00 Gift Aid

Well done Ed, get lots of rest and really good effort, amazing job xxx

Donation by Steph Cooper on 21/04/14


+ £3.75 Gift Aid

Ed Great cause, great challenge.

Donation by The Graham's on 21/04/14


+ £25.00 Gift Aid

Dear Ed, I'll be hot on your heals... Love Alicia xx

Donation by Alicia Langley on 18/04/14


+ £37.50 Gift Aid

Fantastic challenge Ed, hope it all goes well.

Donation by Andy & Amanda on 17/04/14


+ £12.50 Gift Aid

Good Luck Ed

Donation by Tania Hockin on 16/04/14


+ £2.50 Gift Aid

Good luck to Ed on his marathon challenge. Very impressive - we hope he raises lots for you :)

Donation by The Kelly Family on 15/04/14


Quite a Challenge, Ed!

Donation by Russell Cook on 15/04/14

Donation summary

  • * Online donations£27,488.88
  • Offline donations£37,543.02
  • Text donations£453.00
  • Total raised£65,484.90
  • Gift Aid£5,844.32

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