Paul Harrington-Ellis

Fighting Ependymoma for Sky David.

Fundraising for Fighting Ependymoma
£10,972
raised of £10,000 target
Donations cannot currently be made to this page
Fighting Ependymoma

Verified by JustGiving

RCN 1160497
We fund research into ependymoma to help children fight brain cancer

Story

Thank you for visiting our JustGiving page. We truly appreciate your support . 

On Boxing day 2011 a CT scan showed 'a lesion' in our baby's brain. This was after  Sky had been unwell for 4 weeks vomiting, head tilting and declining before our eyes. Within a couple of hours we were blue lighted to GOSH and before the new year arrived he had 2 major brain surgeries and a diagnosis of ependymoma , a cancerous brain tumour. He had chemo until July when a MRI showed the tumour was growing again. Sky had a third surgery in August and we applied to have Proton Radiotherapy in the States. Whilst waiting to see if we would get funding we started on an oral chemo to try and hold the tumour at bay. We were granted funding on the NHS but a scan in Sept showed more tumour growth - too much to make the Proton therapy a viable option. So we decided to go for yet further surgery followed by immediate radiotherapy here in the UK. We then had 9 months of clear scans until our world crashed again with another tumour. Sky had his fifth brain surgery and a second round of radiotherapy with many many risks attached. We were given the worst of news after we finished radiotherapy; the tumour they removed had grown back and Sky had a second tumour towards the front of his brain. We are now enjoying each day as it comes. 

So little is known about childhood brain tumours and the prognosis is not good for a lot of children.  Those that do survive are often left with life limiting disabilities. Funding given to research is, quite frankly, shameful. Without this a cure will never be found. Please know that by donating to Fighting Ependymoma for Sky David, you are making a difference. 

A real difference. 

You are helping to fund vital research. No money goes to CEO's or on advertising. All funds go direct to research projects to find the cure.  

Fight for the cure. Fight for the children. Fight Ependymoma.

Marie, Paul, Ocean & Sky.

Share this story

Help Paul Harrington-Ellis

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Fighting Ependymoma

Verified by JustGiving

RCN 1160497
.Your donation gives real hope to all those children fighting ependymoma brain tumours. We support research into this devastating cancer that affects 100's of children worldwide every year.Our aim is to find a cure. Please help us to help them know that they are not fighting alone. Thankyou.

Donation summary

Total raised
£10,971.71
+ £1,346.50 Gift Aid
Online donations
£9,601.34
Offline donations
£1,370.37

* Charities pay a small fee for our service. Find out how much it is and what we do for it.